Using a Coordinated Data System to Support Families Navigate the Four Steps of Early Identification

The need for this project is to better understand what is required for a coordinated and integrated data system for early identification (CIDSEI) within state/territorial early childhood systems and to identify the necessary tools and resources for the development (or refinement) of similar data systems. A key challenge to early identification of developmental delays and autism at the community level, identified by the CDC Act Early Response to COVID-19 Needs Assessment, was poor system coordination, particularly around how program/systems track and follow up with families. 

Project Overview

This project will develop, implement, and evaluate activities to support state and territories to improve the collection, management, interpretation, and dissemination of data to guide state and territories decision-making related to the four steps of early identification of young children with developmental delays or disabilities. The steps of early identification include (1) parent-engaged developmental monitoring, (2) developmental and autism screening, (3) referral for services, and (4) receipt of early intervention.

This project is funded by the Centers for Disease Control and Prevention (CDC) and will be administered through a cooperative agreement with the Association of University Centers on Disabilities (AUCD). The Help Me Grow National Center will lead a series of project deliverables as a contractor of this project.

Read this project description for more details